Survivor Resources

The following is only a portion of what is available. Please contact the Survivor Network Office at 574-364-2922 if you need help locating information.

Noontime Nosh

All Center for Cancer Care patients and survivors are invited to Noontime Nosh, an informal cooking demonstration hosted by our Registered Dietitians. Noontime Nosh is hosted on the first Thursday of each month at noon. Each month features a different healthy ingredient or style of cooking. The 30-minute session ends with a chance to sample the freshly made dish and take home the recipe.

There is no cost to attend, and registration is not required. Noontime Nosh is held on the second floor of the Center for Cancer Care in the conference room adjacent to the lobby. Contact Becky Overholt, R.D., with questions: (574) 364-2868.

January 2017 recipe: Butternut Squash Mac and Cheez

December 2016 recipe: Holiday Quinoa Salad

November 2016 recipe: Thanksgiving Sides

October 2016 recipe: Creamy Fruit Dip & Pumpkin Hummus

September 2016 recipe: Purslane Salad

August 2016 recipe: Quinoa Salad with Honey Lemon Vinaigrette

July 2016 recipe: Roasted Beets with Feta

June 2016 recipe: Homemade Salad Dressings

May 2016 recipe: White Bean Salad with Peas and Mint

April 2016 recipe: Spring Peanut Pad Thai

March 2016 recipe: Spinach Saag

February 2016 recipe: Parmesan Broccoli and Cauliflower Salad

January 2016 recipe: Hoppin John

December 2015 recipe: Spiced Poached Persimmon with Yogurt

November 2015 recipe: Fall Garden Bounty

October 2015 recipe: Pumpkin Quesadillas

September 2015 recipe: Cheese and Vegetable Frittata

August 2015 recipe: Chickpeas with Arugala

July 2015 recipe: Taco Salad

June 2015 recipe: Rhubarb-Lentil Soup with Creme Fraiche

May 2015 recipes: Quick VinegretteSeasonal SaladsHerbs-How to

April 2015 recipes: Homemade Seasoning Mixes

March 2015 recipe: Bean and Grilled Veggie Burrito

February 2015 recipe: Cauliflower and Pea Curry

December 2014 recipes: Chocolate Truffles

November 2014 recipe: Layered Pumpkin Dip

October 2014 recipe: Coffee Smoothies

September 2014 recipe: Sardine Salad

August 2014 recipe: Nutty Broccoli

July 2014 recipe: Summer Porridge

June 2014 recipe: Massaged Kale Salad

Living with Cancer Support Group

This group provides education and support for persons with cancer, family members, and friends. New friends are made, care and concern is shared, and bonds of support are built.  Education is empowering, and sharing with others is a wonderful way of expanding your network of support.  To learn more about these sessions or to register your interest in attending any of these sessions, please contact a PNI Counselor at the Center for Cancer Care. See the Upcoming Events page for the schedule.

Survivor Buddy Program

The Buddy program enables a newly diagnosed patient to connect with a Survivor Buddy — a former patient who has experienced similar circumstances. The Survivor Buddy can help by offering encouragement, support and practical tips. Buddies are trained and hold all information in confidence. If you would like to be a Buddy or be matched with a Buddy, contact the Survivor Network office at (574) 364-2922

Mujeres de Esperanza: Friendship group for women conducted in Spanish.

Mujeres de esperanza es un grupo de apoyo de amistades de mujeres quienes son sobrevivientes del cáncer del seno y quienes prefieren hablar el español. Las mujeres se juntan mensual en un café en Goshen para dar ánimos y apoyo a los demás. Si usted es una mujer quien habla español con un diagnosis de cáncer, usted está invitada a participar en el grupo. Por favor, marque a Libby a (574) 364-2922.

Naturopathic Wellness Fund:

Available to low income, low asset patients of Goshen Center for Cancer Care, the Naturopathic Wellness Fund covers the cost of naturopathic supportive care recommendations provided to cancer center patients by our Naturopathic Doctors during and after cancer treatment. Professional quality nutraceuticals, acupuncture and exercise services are among the therapeutics which may be offered to eligible low-income patients through the fund.

For more information and an application contact your Naturopathic Doctor at (574) 364-2888.

Goshen Center for Cancer Care has a Patient Financial Advocate,  Ruth Tabolt, available to work through questions about insurance and finances. She can also provide information and answer questions about bills you have recieved and  help set up payment options with you. Ruth processes applications for the Naturopathic Supplements Fund to help pay for supplements through the cancer center’s medicinary. If you have questions for Ruth, please contact her at (574) 364-2352.

You can also use this helpful resource to descipher common insurance questions: Cancer Insurance Checklist

P.I.N.K.

Positive Influence N Knowledge is a self help friendship group of breast cancer survivor women whose primary language is English. The purpose of P.I.N.K. is to provide courage, hope and strength to other breast cancer sisters. Members meet the first Thursday of each month at various Elkhart county locations. P.I.N.K. members abide by the following statement of confidentiality: “By participating in this friendship group, we agree that what we hear at P.I.N.K., when we leave here, that it will stay here.” To join the group, contact the Survivor Network office at (574) 364-2922 or estout@goshenhealth.com

Self help friendship groups

The self help friendship groups of the Goshen Cancer Survivor Network are organized and conducted by Network members. They are NOT professionally led support groups. Each group is a voluntary association of people who share a common condition and want to support and encourage one another.

If you would like to start a new friendship group, contact the Survivor Network Coordinator at (574) 364-2922 or estout@goshenhealth.com. The coordinator will arrange to meet with you to provide guidelines and organizational ideas for your new group.

Meals to Heal

The website for this meal service has educational sections about cancer and nutrition. Check the ResourcesCaregivers and Blog tabs.  http://meals-to-heal.com/

These organizations offer detailed information and help with legal issues, prescriptions, insurance costs and co-pays.

Asbestos and Mesothelioma Center – www.asbestos.com the authority on asbestos exposure and mesothelioma information. The main focus is working with individuals and their families to help them find local treatment centers, doctors and support groups, provide free informational resources, and help file VA claims.

National Cancer Legal Services Network – www.nclsn.org recently launched a new website, featuring a national directory of organizations that provide free legal assistance for people and families affected by a cancer diagnosis.

The website, which also includes training materials and resources to assist those starting new cancer legal advocacy programs, aims to increase the accessibility and availability of legal resources for cancer survivors.

The website and establishment of the NCLSN was led by LegalHealth, a division of the New York Legal Assistance Group, with initial funding from the LiveSTRONG Foundation. LegalHealth, the National Coalition for Cancer Survivorship, and Atlanta Legal Aid conducted a national survey of private law firms, not-for-profit legal aid organizations, medical-legal partnerships, bar associations, cancer support organizations, individual attorneys, social workers, and patient navigator programs to create the directory.

“NCLSN.org is a new resource for people from many different perspectives – patients, health care professionals, legal aid programs, and the entire cancer community—from which they can learn more about these services,” said Randye Retkin, Director of LegalHealth. “In spite of the devastating nonmedical consequences of an overwhelmingly prevalent disease, cancer legal services programs are far too few. Through NCLSN.org, we not only hope to make it easier to locate those programs that exist, but also to encourage their increased availability nationwide.”

In addition to the map, directory, studies, and training materials, the NCLSN uses the platform to demonstrate the nonmedical and legal issues that cancer survivors and providers experience so visitors can better understand the significance and need for cancer legal advocacy programs.  The NCLSN provides patient navigators and other members of cancer care teams with resources to help survivors address cancer-related legal issues.

Patient Advocate Foundation – www.patientadvocate.org provides financial assistance for crones disease, ITP, inflammatory bowel disease, osteoporosis pain, psoriatic arthritis, ulcerative colitis, breast cancer, colon cancer, diabetes, head and neck cancer, kidney cancer, lung cancer, pancreatic cancer, prostate cancer, sarcoma, lymphoma, malignant brain tumors, multiple myeloma, myelodysplastic syndrome and other pre-leukemia diseases. Also assists patients with secondary issues related to chemotherapy. Eligibility is not income dependent, but based on a financial assessment of the amount of income going towards medical bills. Call (866) 512-3861 or email pap@patientadvocate.org.

Patient Services Inc. – www.uneedpsi.org is a non-profit, charitable organization providing assistance with the cost of health insurance premiums associated with cobra, prescriptions, co-payments with private insurance and Medicare. Includes patients with bone metastases, chronic myeloid leukemia, cutaneous t-cell lymphoma, cystic fibrosis, GI stromal tumor, hemophilia, Parkinson’s disease, primary immune deficiency, rheumatoid arthritis, anemia, and Von Willebrand disease. Call: (800) 366-7741.

Cancer Care – www.cancercare.org provides information and resources for patients with all cancer types including; bladder, bone, brain tumors, breast carcinoid, cervical, colorectal, esophageal, eye, head and neck, kidney, leukemia, liver, lung,, lymphoma, melanoma, multiple myeloma, ovarian, prostate, pancreatic, sarcoma, skin cancers, non-melanoma, stomach, testicular, thyroid, uterine, vaginal, and other cancers. Some programs for all cancers as well. Call: (800) 813-4673.

Patient Access Network Foundation – www.patientaccessnetwork..org provides information for anemia, colorectal cancer, cutaneous t-cell lymphoma, multiple myeloma, breast cancer, myelodysplastic syndrome, non Hodgkin’s lymphoma, non small cell cancer, pancreatic cancer and oncology cytoprotection, Cystic Fibrosis, kidney transplant immunosuppressant, RSV, rheumatoid arthritis, chemo induced nausea, secondary issues as a result of cancer treatment and symptom management. Call: (866) 316-7263.

Health Well Foundation – www.healthwellfoundation.org provides information about chemotherapy induced anemia and neutropenia, colorectal carcinoma, cutaneous t-cell lymphoma, head and neck cancers, Hodgkin’s disease, immunosuppressive therapy, multiple myeloma, myelodysplastic syndromes, non-Hodgkin’s lymphoma, non-small cell lung cancer, breast caner, carcinoid tumors, ITP, secondary hyper-parathyroidism, rheumatoid arthritis and wilm’s tumor. Call: (800) 675-8416.

Chronic Disease Fund, Inc. – www.cdfund.org provides information about breast cancer, colorectal caner, MDS, multiple myeloma, lung cancer and pancreatic cancer. Call: (877) 968-7233.

National Organization for Rare Disorders (NORD) – www.rarediseases.org provides information about rare cancers and other disorders including bladder cancer, Hodgkin’s disease, lymphomas, hepatocellular carcinoma, multiple myeloma, advanced renal cell carcinoma, acute promyelotic leukemia and nephrotic syndrome. Call: (203) 744-0100.

Leukemia and Lymphoma Society – www.lls.org provides information for patients with myeloma, lymphoma, CLL , CML, ALL and AML. Conducts community information seminars and also offers $100 annual financial assistance per patient with minimal application. Contact the Survivor Network office at (574) 535-2922 for an application. The Co-Pay Assistance Program provides up to five thousand dollars to assist with co pay costs and heath insurance premiums. Patient must meet income and other guidelines. Call (877) 557-2672 for more information.  In the state of Indiana call (317) 726-2270 or toll free call (800) 846-7764.

Partnership for Prescription Assistance can direct you to one of four patient assistance programs for prescription assistance and co-pay assistance (888) 477-2669 or www.pparx.org.

National Bone Marrow Donor Program – www.marrow.org provides information about financial assistance to help cover the cost of bone marrow or cord blood transplants.

Mesothelioma Cancer Alliance is a resource for patients and their families who are looking for  information about mesothelioma. Website is http://www.mesothelioma.com/

Plural Mesothelioma – http://www.pleuralmesothelioma.com provides current data on all topics relating to pleural mesothelioma cancer. We are dedicated to compiling the latest and most up-to-date information on pleural mesothelioma and offer a number of resources to those coping with the pulmonary cancer. From treatment options to top doctors and the best cancer centers in the United States, PleuralMesothelioma.com is a one-stop resource for pleural mesothelioma patients and their families.

Libby Stout
Cancer Survivor Network Coordinator
(574) 364-2922